Genetic Ethics Bibliography

Issues: 
Special Resource Types: 

 

The following sources do not necessarily reflect the Center's positions or values. These sources, however, are excellent resources for familiarizing oneself with all sides of the relevant issues.

Genetics (General) | Genetic Determinism | Genetics Law & Public Policy | Intellectual Property & Patenting of Human Genes/Tissues | Genetic Engineering & Gene Therapy | Genetic Testing and Screening | Reproductive Genetics (Reprogenetics)

 

Genetics (General)

  • Andrews, Lori, Maxwell Mehlman, and Mark Rothstein. Genetics: Ethics, Law and Policy. 4th ed. Eagan, MN: West Academic, 215.
  • Atkinson, Paul, Peter Glasner, and Helen Greenslade, eds. New Genetics, New Identities. New York: Routledge, 2007.
  • Barash, Carol Isaacson. Just Genes: The Ethics of Genetic Technologies. Westport, CT: Praeger, 2007.
  • Berliner, Janice. Ethical Dilemmas in Genetics and Genetic Counseling: Principles through Case Scenarios. Oxford University Press, 2014.
  • Blackford, Russell. Humanity Enhanced: Genetic Choice and the Challenge for Liberal Democracies. Basic Bioethics. Cambridge, MA: MIT Press, 2014.
  • Boesky, Amy, ed. The Story Within: Personal Essays on Genetics and Identity. Baltimore: The Johns Hopkins University Press, 2013.
  • Bunton, Robin and Alan Petersen, eds. Genetic Governance: Health, Risk and Ethics in a Biotech Era. New York: Routledge, 2005.
  • Burley, Justine, ed. The Genetic Revolution and Human Rights. New York: Oxford University Press, 1999.
  • Burley, Justine, and John Harris, eds. A Companion to Genethics. Malden, MA: Blackwell, 2002.
  • Condit, Celeste Michelle. The Meanings of the Gene: Public Debates about Human Heredity. Madison: University of Wisconsin Press, 1999.
  • Corrigan, Oonagh. Genetic Databases: Socio-Ethical Issues in the Collection and Use of DNA. New York: Routledge, 2004.
  • Deane-Drummond, Celia. Genetics and Christian Ethics. New York: Cambridge University Press, 2006.
  • Deane-Drummond, Celia, Robin Grove-White, and Bronislaw Szerszynski. Reordering Nature: Theology, Society and the New Genetics. New York: T&T Clark, 2003.
  • DeGrazia, David. Creation Ethics: Reproduction, Genetics, and Quality of Life. Reprint ed. Oxford University Press, 2014.
  • Duster, Troy. Backdoor to Eugenics. 2nd ed. New York: Routledge, 2003. 
  • Gehring, Verna V., ed. Genetic Prospects: Essays on Biotechnology, Ethics, and Public Policy. Lanham, MD: Rowman & Littlefield, 2004.
  • Hashiloni-Dolev, Yael. A Life (Un)worthy of Living: Reproductive Genetics in Israel and Germany. Dordrecht, Netherlands: Springer, 2007.
  • Häyry, Matti. Rationality and the Genetic Challenge: Making People Better? New York: Cambridge University Press, 2010.
  • Hubbard, Ruth, and Elijah Wald. Exploding the Gene Myth. Boston: Beacon, 1999.
  • Jasanoff, Sheila, ed. Reframing Rights: Bioconstitutionalism in the Genetic Age. Cambridge, MA: MIT Press, 2011.
  • Jersild, Paul. The Nature of Our Humanity: The Ethics of Genetics and Biotechnology. Minneapolis: Fortress Press, 2009.
  • Kevles, Daniel. In the Name of Eugenics: Genetics and the Uses of Human Heredity. New York: Harvard University Press, 1995.
  • Kilner, John F., Rebecca D. Pentz, and Frank E. Young, eds. Genetic Ethics: Do the Ends Justify the Genes? Grand Rapids: Eerdmans, 1997.***
  • Kitcher, Philip. The Lives to Come: The Genetic Revolution and Human Possibilities. New York: Touchstone, 1996.
  • Langlois, Adèle. Negotiating Bioethics: The Governance of UNESCO’s Bioethics Program. New York: Routledge, 2013.
  • Lee, Kee kok. Philosophy and Revolutions in Genetics: Deep Science and Deep Technology. New York: Palgrave Macmillan, 2003.
  • Nelkin, Dorothy, and M. Susan Lindee. The DNA Mystique: The Gene as a Cultural Icon. Ann Arbor, MI: University of Michigan Press, 2004.
  • Paul, Diane B., and Jeffrey P. Brosco. The PKU Paradox: A Short History of a Genetic Disease. Johns Hopkins Biographies of Disease. Baltimore: Johns Hopkins University Press, 2013.
  • Peterson, James C. Genetic Turning Points: The Ethics of Human Genetic Intervention. Grand Rapids: Eerdmans, 2001.
  • Shannon, Thomas A., ed. Genetics: Science, Ethics, and Public Policy: Readings in Bioethics. Lanham, MD: Rowman & Littlefield, 2005.
  • Stern, Alexandra. Telling Genes: The Story of Genetic Counseling in America. Baltimore: Johns Hopkins University Press, 2012.
  • Wertz, Dorothy C., and John C. Fletcher. Genetics and Ethics in Global Perspective. Dordrecht, Netherlands: Springer, 2004.
  • Yashon, Ronnee and Michael Cummings. Human Genetics and Society. 2nd ed. Pacific Grove, CA: Brooks Cole, 2011.

Out of Print

  • Andrews, Lori B. Future Perfect. New York: Columbia University Press, 2001.
  • Cahill, Lisa Sowle.  Genetics, Theology, and Society: An Interdisciplinary Conversation. New York: Crossroad, 2005.***
  • Donovan, Aine and Ronald M. Green, eds. The Human Genome Project in College Curriculum: Ethical Issues and Practical Strategies. Lebanon, NH: Dartmouth College Press, 2008.
  • Harris, John. Clones, Genes, and Immortality: Ethics and the Genetic Revolution. New York: Oxford University Press, 1998.
  • Monsen, Rita Black. Genetics and Ethics in Health Care: New Questions in the Age of Genomics Health. Silver Spring, MD: American Nurses Association, 2008.
  • Monsour, Daniel, ed. Ethics and the New Genetics: An Integrated Approach. Toronto: University of Toronto Press, 2007.
  • Murphy, Timothy, and Marc A. Lappe, eds. Justice and the Human Genome Project. Berkeley: University of California Press, 1994.
  • Nelson, J. Robert. On the New Frontiers of Genetics and Religion. Grand Rapids: Eerdmans, 1994.
  • Parker, L.S., and Rachel A. Ankeny, eds. Mutating Concepts, Evolving Disciplines: Genetics, Medicine, and Society. Norwell, MA: Springer, 2002. (e-book edition available)
  • Peters, Ted. Genetics: Issues of Social Justice. Cleveland: Pilgrim, 1998.
  • Peters, Ted. Playing God: Genetic Determinism and Human Freedom. New York: Routledge, 1997.
  • Rothman, Barbara Katz. Genetic Maps and Human Imaginations: The Limits of Science in Understanding Who We Are. New York: W.W. Norton, 1998.
  • Song, Robert. Human Genetics: Fabricating the Future. Cleveland: Pilgrim, 2002.***

 

Genetic Determinism

  • Buchanan, Allen, Dan W. Brock, Norman Daniels, and Daniel Wikler. From Chance to Choice: Genetics and Justice. New York: Cambridge University Press, 2000.
  • Clark, William R. and Michael Grunstein. Are We Hardwired? The Role of Genes in Human Behavior. New York, Oxford University Press, 2000.
  • Keller, Evelyn Fox. The Century of the Gene. Cambridge, MA: Harvard University Press, 2001.
  • Maheu, Louis and Roderick A. MacDonald, eds. Challenging Genetic Determinism: New Perspectives on the Gene in Its Multiple Environments. Canada: McGill-Queen's University Press, 2011.
  • Parens, Erik, Audrey R. Chapman, and Nancy Press, eds. Wrestling with Behavioral Genetics: Science, Ethics, and Public Conversation. Baltimore: Johns Hopkins University Press, 2008.

Out of Print

  • Peters, Ted. Playing God? Genetic Determinism and Human Freedom. New York: Routledge, 2003.

 

Genetics Law & Public Policy

For relevant materials see the Public Policy Bibliography, particularly the "Genetics & Public Policy" Section.

 

Intellectual Property & Patenting of Human Genes/Tissues

  • Koepsell, David. Who Owns You? The Corporate Gold Rush to Patent Your Genes. Malden, MA: Blackwell, 2009.
  • Mills, Oliver. Biotechnological Inventions: Moral Restraints and Patent Law. Burlington, VA: Ashgate, 2005.
  • Resnik, David B. Owning the Genome: A Moral Analysis of DNA Patenting. Albany, NY: State University of New York Press, Albany, 2004.
  • Rimmer, Matthew and Alison McLennan, eds. Intellectual Property and Emerging Technologies. Northampton, MA: Edward Elgar Publishing, Inc., 2012.
  • Skloot, Rebecca. The Immortal Life of Henrietta Lacks. New York: Broadway Paperbacks, 2010.
  • Van Overwalle, Geertrui. Gene Patents and Collaborative Licensing Models: Patent Pools, Clearinghouses, Open Source Models and Liability Regimes. New York: Cambridge University Press, 2009.

Out of Print

  • Magnus, David, Arthur L. Caplan, and Glenn McGee, eds. Who Owns Life? Amherst, NY: Prometheus Books, 2002.

 

Genetic Engineering & Gene Therapy

See related materials in the Biotechnology, Emerging Technology, and Human Enhancement Bibliographies

  • Baillie, Harold W. and Timothy K. Casey. Is Human Nature Obsolete? Genetics, Bioengineering, and the Future of the Human Condition. Cambridge, MA: MIT Press, 2005.
  • Berry, Roberta. The Ethics of Genetic Engineering. New York: Routledge, 2007.
  • Cole-Turner, Ronald, ed. Design and Destiny: Jewish and Christian Perspectives on Human Germline Modification. Cambridge, MA: MIT Press, 2008.
  • Edmonds, Matt. A Theological Diagnosis: A New Direction on Genetic Therapy, ‘Disability’ and the Ethics of Healing. Philadelphia: Jessica Kingsley Publishers, 2011.
  • Evans, John H. Playing God? Human Genetic Engineering and the Rationalization of Public Bioethical Debate. Chicago: The University of Chicago Press, 2002.
  • Flaman, Paul. Genetic Engineering: Christian Values and Catholic Teaching. Mahwah, NJ: Paulist Press, 2002. ***
  • Green, Ronald M. Babies by Design: The Ethics of Genetic Choice. New Haven, CT: Yale University Press, 2007.
  • LeVine III, Harry. Genetic Engineering. 2nd ed. Santa Barbara: ABC-CLIO Inc., 2006.
  • Mehlman, Maxwell J. Transhumanist Dreams and Dystopian Nightmares: The Promise and Peril of Genetic Engineering. Baltimore: The Johns Hopkins University Press, 2012.
  • Miah, Andy. Genetically Modified Athletes: Biomedical Ethics, Gene Doping and Sport. London: Routledge, 2004.
  • Nossal, G. J. V. and Ross L. Coppel. Reshaping Life: Key Issues in Genetic Engineering. New York: Cambridge University Press, 2002.
  • Rasko, John, Gabrielle O'Sullivan, and Rachel Ankeny, eds. The Ethics of Inheritable Genetic Modification: A Dividing Line? New York: Cambridge University Press, 2006.
  • Reiss, Michael J. and Roger Straughan. Improving Nature? The Science and Ethics of Genetic Engineering. United Kingdom: Cambridge University Press, 2001.
  • Sandel, Michael J. The Case against Perfection: Ethics in the Age of Genetic Engineering. Cambridge, MA: Belknap, 2007.
  • Schneider, Angela J., and Theodore Friedmann, eds. Gene Doping in Sports: The Science and Ethics of Genetically Modified Athletes. San Diego: Academic, 2006.
  • Stock, Gregory. Redesigning Humans: Our Inevitable Genetic Future. New York: Houghton Mifflin, 2002.

Out of Print

  • Boylan, Michael, and Kevin Brown. Genetic Engineering: Science and Ethics on the New Frontier. Upper Saddle River, NJ: Prentice Hall, 2001.
  • Coors, Marilyn E. The Matrix: Charting an Ethics of Inheritable Genetic Alteration. Lanham, MD: Rowman & Littlefield, 2002.
  • Dann, Jack, and Gardner R. Dozois, eds. Clones: Nine Tales of Genetic Engineering and Its Impact on Tomorrow. New York: Ace, 1997. (e-book edition available)
  • Demy, Timothy J. and Gary P. Stewart, eds. Genetic Engineering: A Christian Repsonse: Crucial Considerations for Shaping Life. Grand Rapids: Kregel, 1999. ***
  • Gordon, Jon W. The Science and Ethics of Engineering the Human Germ Line: Mendel's Maze. Hoboken, NJ: Wiley-Liss, Inc., 2003.
  • Palmer, Julie Gage, and LeRoy Walters. The Ethics of Human Gene Therapy. New York: Oxford University Press, 1997.
  • Shannon, Thomas A. Made in Whose Image: Genetic Engineering and Christian Ethics. New York: Humanity Books, 1999.***
  • Stock, Gregory, and John Campbell, eds. Engineering the Human Germline: An Exploration of the Science and Ethics of Altering the Genes We Pass to Our Children. New York: Oxford University Press, 2000.

 

Genetic Testing & Screening

See related materials in the Disability Ethics and Reproductive Ethics Bibliographies

  • Baily, Mary Ann and Thomas H. Murray, eds.  Ethics and Newborn Genetic Screening: New Technologies, New Challenges. Baltimore: John Hopkins University Press, 2009.
  • Chadwick, Ruth F., Darren Shickle, H.A. Ten Have, and Urban Wiesing, eds. The Ethics of Genetic Screening. The Netherlands: Kluwer Academic, 2010.
  • Klizman, Robert. Am I My Genes? Confronting Fate and Family Secrets in the Age of Genetic Testing. New York: Oxford University Press, 2012.
  • Raz, Aviad E. Community Genetics and Genetic Alliances: Eugenics, Carrier Testing, and Networks of Risk. New York: Routledge, 2010.
  • Sharpe, Neil F., and Ronald F. Carter. Genetic Testing: Care, Consent and Liability. Hoboken, NJ: John Wiley & Sons, 2006.
  • Skene, Loane and Janna Thompson, eds. The Sorting Society: The Ethics of Genetic Screening and Therapy. New York: Cambridge University Press, 2008.
  • Valverde, Carlos. Genetic Screening of Newborns: An Ethical Inquiry. New York: Nova Science Publishers, 2010.

Out of Print

 

Reproductive Genetics (Reprogenetics)

See related materials in the Disability Ethics, Human Enhancement, and Reproductive Ethics Bibliographies.

  • Chadwick, Ruth, ed. Ethics, Reproduction and Genetic Control. 2nd ed. New York: Routledge, 1994.
  • Davis, Dena S. Genetic Dilemmas: Reproductive Technology, Parental Choices, and Children's Futures. 2nd ed. New York: Oxford University Press, 2009.
  • Glover, Jonathan.  Choosing Children: Genes, Disability, and Design. New York: Oxford University Press, 2006. 
  • Knowles, Lori P. and Gregory K. Kaebnick, eds.  Reprogenetics: Law, Policy and Ethical Issues.  Baltimore: John Hopkins University Press, 2007.
  • Gavaghan, Colin. Defending the Genetic Supermarket: Law and Ethics of Selecting the Next Generation. New York: Routledge-Cavendish, 2007.
  • Roberts, Melina A. and David T. Wasserman, eds. Harming Future Persons: Ethics, Genetics and the Nonidentity Problem. New York: Springer, 2009.
  • Wilkinson, Stephen. Choosing Tomorrow’s Children: The Ethics of Selective Reproduction. New York: Oxford University Press, 2010.

Out of Print

  • Gordon, Jon W. The Science and Ethics of Engineering the Human Germ Line: Mendel's Maze. Hoboken, NJ: Wiley-Liss, 2003.
  • Haker, Hille and Deryck Veyleveld, eds. The Ethics of Genetics in Human Procreation. Burlington, VA: Ashgate, 2000.
  • McGee G. The Perfect Baby: Parenthood in the New World of Cloning and Genetics. Lanham, MD: Rowman & Littlefield, 2000.
  • Stock, Gregory, and John Campbell, eds. Engineering the Human Germline: An Exploration of the Science and Ethics of Altering the Genes We Pass to Our Children. New York: Oxford University Press, 2000.

 

*** Designates Christian Resource

 

 

Updated October 2016