Charlie Gard Parents End Legal Fight for ‘Beautiful’ Baby; Judge Promises Reduced Jail Time if Tennessee Inmates Get Vasectomies; The Curse of a ‘None of the Above’ Disease; HIV Drug Resistance Could Undermine Progress in AIDS Battle: WHO …
July 28, 2017 Donate to CBHD
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LESSONS FROM CHARLIE GARD
CBHD Executive Director, Paige Cunningham was featured on Chris Fabry Live (Moody Radio) to discuss the ethical issues surrounding the Charlie Gard case in the UK. In her analysis, Paige navigates the emotionally charged nature of the situation, the difficultues of evaluating a differing legal system, and the rarity of Charlie's condition. Her segment concludes with some takeaway lessons.  
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NEWS HIGHLIGHTS
Charlie Gard Parents Announce Death of ‘Beautiful’ Baby
(BBC) — Charlie Gard, the baby at the centre of a legal row over his treatment, has died, a family spokesman has confirmed. The 11-month-old was moved to a hospice following a High Court ruling. He suffered from an extremely rare genetic condition causing progressive brain damage and muscle weakness. His parents, Connie Yates and Chris Gard, fought a lengthy legal battle with Great Ormond Street Hospital to allow him to be taken to the US for legal treatment. …
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Judge Promises Reduced Jail Time if Tennessee Inmates Get Vasectomies
(NPR) — As general sessions judge for White County, Tenn., Sam Benningfield says the vast majority of cases he hears are drug-related offenses. The opioid epidemic has hit the state especially hard — resulting in more than 1,400 drug overdose deaths there in 2015 alone, according to the CDC — and he felt that an unusual solution would be necessary to drive home the dangers of illegal drugs for would-be parents. So in May, Benningfield issued a standing order: If inmates at the White County Jail undergo a form of long-term contraception for free — a vasectomy for men or a Nexplanon implant for women — they can shave 30 days off their sentences …
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The Curse of a ‘None of the Above’ Disease
(Undark) — “We need to appreciate just how muddled the concept of medically unexplained symptoms is,” said James Coyne, a professor of health psychology at University Medical Center, Groningen, in the Netherlands. It’s meant to serve as a placeholder for patients who complain of vague health issues that can’t be verified through routine testing or whose cause remains uncertain. But often, Coyne said, there’s a degree of mistrust involved, as many health care professionals prefer psychosomatic explanations for these nebulous ailments …
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Companies Rush to Develop ‘Utterly Transformative’ Gene Therapies
(New York Times) — The approval of gene therapy for leukemia, expected in the next few months, will open the door to a radically new class of cancer treatments. Companies and universities are racing to develop these new therapies, which re-engineer and turbocharge millions of a patient’s own immune cells, turning them into cancer killers that researchers call a “living drug.” One of the big goals now is to get them to work for many other cancers, including those of the breast, prostate, ovary, lung and pancreas …
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First Human Embryos Edited in U.S.
(MIT Technology Review) — The first known attempt at creating genetically modified human embryos in the United States has been carried out by a team of researchers in Portland, Oregon, MIT Technology Review has learned. The effort, led by Shoukhrat Mitalipov …
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Zika Testing Recommendations Changed for Pregnant Women
(STAT News) — There’s never been anything easy about the Zika virus outbreak, and a new complication is now coming to light. Testing for Zika infection is becoming more difficult, making it harder for doctors to advise pregnant women about the …
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Jahi McMath’s Family Wins Backing for Argument that She’s Alive
(San Francisco Chronicle) — It’s been more than three years since 13-year-old Jahi McMath was declared dead after something went terribly wrong following throat surgery at Children’s Hospital Oakland. Her family has never accepted the declaration and has kept her …
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Pressure Mounts to Curtail Surgery on Intersex Children
(STAT News) — Children whose sexual characteristics don’t neatly align with the norm have for decades faced surgery to rearrange their anatomy to resemble that of more typical boys and girls — long before they were old enough to have …
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Note: News stories and events do not necessarily represent the Center's views. For additional commentary on many of the issues they raise, please see the CBHD web site at www.cbhd.org. Please visit www.bioethics.com for daily posts on bioethics news and issues.
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