(Tech Insider) – We want to protect the information that’s most personal to us. Yet our personal genetic blueprint — which can be used to identify a person, predict certain diseases and traits, and will likely reveal much more in the future, from personality to intelligence — is nearly impossible to secure. You can take reasonable measures to try to keep something like your social security number private, but you leave your DNA everywhere: when you sneeze, spit out gum — even when you sweat. That DNA is already easy and cheap to sequence, and it will reveal more and more information as time goes on
(Newsweek) – In times of war, hospitals and other healthcare facilities are where the most vulnerable – the sick and wounded – are found. They are places of hope and humanity amid violence and chaos. The Geneva Conventions stipulate that functioning hospitals must not be bombed for any reason without prior warning while medical workers and patients are inside. For people caught up in armed conflict, medical facilities provide reassurance that even in the midst of appalling violence, they can safely access treatment.
BMC Medical Ethics (vol. 16, October 2015) is available online by subscription only.
- “Ethical Issues Surrounding the Provider Initiated Opt-Out Prenatal HIV Screening Practice in Sub-Saharan Africa: A Literature Review” by L. Bain, K. Dierickx, and K. Hens
- “Key Factors in Children’s Competence to Consent to Clinical Research” by I. Hein, et al.
Developing World Bioethics (vol. 15, no. 3, 2015) is available online by subscription only.
- “Considerations for a Human Rights Impact Assessment of a Population Wide Treatment for HIV Prevention Intervention” by Johanna Hanefeld, et al.
- “Reuse of Pacemakers in Ghana and Nigeria: Medical, Legal, Cultural and Ethical Perspectives” by Aloysius Ochasi and Peter Clark
- “Ethical Implications of Case-Based Payment in China: A Systematic Analysis” by Pingue Jin, Nikola Biller-Andorno, and Verina Wild
- “Bioethics in the Malay-Muslim Community in Malaysia: A Study on the Formulation of Fatwa on Genetically Modified Food by the National Fatwa Council” by Noor Munirah Isa, et al.
- “Between Relativism and Imperialism: Navigating Moral Diversity in Cross-Cultural Bioethics” by Daniel Beck
- “Perceived Quality of Informed Refusal Process: A Cross-Sectional Study from Iranian Patients’ Perspectives” by Mehrdad Farzandipour, Abbas Sheikhtaheri, and Monireh Sadeqi Jabali
- “Global Health Care Justice, Delivery Doctors and Assisted Reproduction: Taking a Note From Catholic Social Teachings” by Cristina Richie
- “Ethical Issues in Adolescents’ Sexual and Reproductive Health Research in Nigeria” by Morenike Oluwatoyin Folayan, et al.
- “Systemic Negligence: Why It Is Morally Important for Developing World Bioethics” by Chhanda Chakraborti
- “To What did They Consent? Understanding Consent Among Low Literacy Participants in a Microbicide Feasibility Study in Mazabuka, Zambia” by Esther Munalula-Nkandu, et al.
Nursing Ethics (vol. 22, no. 7, 2015) is available online by subscription only.
- “Sustaining Hope as a Moral Competency in the Context of Aggressive Care” by Elizabeth Peter, Shan Mohammed, and Anne Simmonds
- “The Significance of Small Things for Dignity in Psychiatric Care” by Frode Skorpen, Arne Rehnsfeldt, and Arlene Arstad Thorsen
- “Patient Advocacy: Japanese Psychiatric Nurses Recognizing Necessity for Intervention” by Åsa Rejnö and Linda Berg
- “Nurses’ Reflections on Good Nurse Traits” Implications for Improving Care Quality” by Shu-Yueh Chen and Hui-Chen Hsu
- “Nurses’ Autonomy in End-of-Life Situations in Intensive Care Units” by Maria Cristina Paganini and Regina Szylit Bousso
- “‘There Was No Good Choice’: An Ethics Case Study from the Ebola Response” by Cathy L. Rozmus, et al.
(UPI) – Slightly more than one out of every five U.S. pediatricians has dismissed families because parents refused to vaccinate their children, according to a recent study. The American Academy of Pediatricians advises against turning families away for nonvaccination, but doctors have come under pressure not to treat children who have not been vaccinated because of recent communicable disease outbreaks — especially the measles outbreak at Disneyland in California.
(Medical Xpress) – It has been claimed that a treatment for female infertility will be available by stem cell therapy. But a new study by Swedish researchers from the University of Gothenburg and Karolinska Institutet published in Nature Medicine questions whether new egg cells can be produced using stem cells. Researchers have long hoped that stem cells could generate new egg cells that can be used to treat infertility in women.
(Washington Post) – A startling new study that shows a big spike in the death rate for a large group of middle-aged whites in the United States was rejected by two prestigious medical journals, the study’s co-author, Nobel laureate Angus Deaton, said Tuesday.
(The Atlantic) – The Akimel O’odham (Pima), a group of Native Americans from Arizona, have one of the highest rates of type 2 diabetes in the world. More than half the adults are affected, and while diet and lifestyle factors certainly contribute, scientists have long suspected that the community carries genetic variants that also affect their risk. Since 1965, the tribe have been intensely studied by researchers from the National Institutes of Health. This work has been a boon to the outside world: It was instrumental in clarifying the heritable nature of type 2 diabetes, and its connection with obesity. But for most of that time, the Akimel O’odham have been passive participants in the research of their lives.
(UPI) – Snappy headlines with flashy words work well to gain interest with readers. In the case of health reporting, however, the overuse of superlative terms such as “breakthrough,” “game changer,” and “cure” was found in a new study to be widespread and my create unrealistic hype about unproven drugs, researchers said.
(U.S. News and World Report) – Using gene therapy, researchers report they’ve successfully treated muscular dystrophy in dogs. They believe this could pave the way for clinical trials of the treatment in humans within the next few years. The dogs had Duchenne muscular dystrophy, which is the most common form of the disease in humans and primarily affects boys. Patients lose their ability to walk and breathe as they get older, the researchers said.
(Medical Xpress) – The Medical University of Vienna is coordinating an international research project, which investigates the effectiveness of tried and tested medicines for the treatment of some of the heaviest burdens of our modern society including diseases such as cancer, diabetes and cardiovascular diseases. One molecule that these disorders have in common is a receptor known as the calcium-sensing receptor (CaSR), which is the molecular starting point of this project.
(The Guardian) – Shapiro says she grappled with infertility as well, and that experience makes it even harder to decide how to handle the leftover the embryos. That’s because when you overcome infertility and successfully conceive a child using one of them, you feel the potential for those embryos to become living, breathing human beings profoundly. “I had the experience of having a child, so the possibility that the other embryos could be children makes discarding them feel as if it’s killing,” Shapiro said. “It doesn’t feel like they’re simply embryos. It feels as if they’re children wanting to be born.”
(The Telegraph) – Women are being denied the chance to become mothers because of IVF rationing on the NHS, a charity has warned. Fewer than one in five areas of England are offering women three cycles of IVF despite recommendations by the health watchdogs. Fewer than one in five areas of England are offering women three cycles of IVF despite recommendations by the health watchdogs.
(Yahoo! News) – An emergency room doctor in France who was convicted of poisoning a terminally ill patient has attempted to kill himself, sources close to the case said Saturday. Nicolas Bonnemaison, 54, was found on Saturday morning slumped in a vehicle in the village of Tosse in southwestern France after apparently taking medication.
(The Telegraph) – On paper, egg sharing – which is only done in the private system – seems like a great way to rebalance the scales. A woman with healthy eggs but without the necessary funds – one IVF cycle can cost £5,000 or more – gets a free (or almost free) roll of the IVF dice. A couple without eggs get the chance they so desperately want. Surely it’s a win-win situation. Except, of course, it isn’t that simple. Because, as women like Emma have found, there can be success for the egg recipient but empty arms for the egg sharer. In fact, the process is a minefield filled with financial incentives, as well as emotional and ethical landmines.
(New York Times) – Six years after legislation to encourage end-of-life planning touched off a furor over “death panels,” the Obama administration issued a final rule on Friday that authorizes Medicare to pay doctors for consultations with patients on how they would like to be cared for as they are dying. The administration proposed the payments in July, touching off none of the rancor that first accompanied the idea during debate on the Affordable Care Act in 2009.
(Medscape) – Patients waiting for a lung transplant can suffer from depression, anxiety, and stress — which can potentially affect transplant outcome — but a previous diagnosis of a mood disorder is not predictive of who is at risk, new research suggests. There is a “need for new measures to screen patients while they’re waiting for lung transplant,” said study investigator Abhay Vakil, MD, from the Mayo Clinic in Rochester, Minnesota.
(World) – Many parents have lamented their children growing up, with a joking wish they would stay “little” forever. But when Mark and Jenn Hooper asked pediatric endocrinologist Paul Hofman to stunt their disabled 6-year-old daughter’s growth, they were quite serious. The Hoopers’ case is getting attention now as parents in the United States and elsewhere are looking to growth attenuation therapy as a way to make it easier to care for their disabled children.
(Sydney Morning Herald) – Australian babies born via surrogates in Nepal have been allowed to leave the country, ending a six-week stalemate that sparked renewed debate on domestic surrogacy laws. Dozens of families have spent weeks in limbo, unable to leave Nepal with their children, after the country’s Supreme Court suspended commercial surrogacy on August 25. Immigration officials then refused to issue exit visas for babies born through surrogacy but on Wednesday, after weeks of diplomatic negotiations and as the families launched legal proceedings, permission was granted for the infants to leave.