Bioethics (vol. 30, no. 8, 2016) is available online by subscription only.
- “Integrated But Not Whole? Applying an Ontological Account of Human Organismal Unity to the Brain Death Debate” by Melissa Moschella
- “Adversaries at the Bedside: Advance Care Plans and Future Welfare” by Aidan Kestigian and Alex John London
- “Should we use Commitment Contracts to Regulate Student use of Cognitive Enhancing Drugs?” by John Danaher
- “Intermediate Moral Respect and Proportionality Reasoning” by Thomas Finegan
- “Medical Need, Equality, and Uncertainty” by L. Chad Horne
- “Incentivizing Patient Choices: The Ethics of Inclusive Shared Savings” by Richard Yetter Chappell
- “The Meta-Nudge – A Response to the Claim That the Use of Nudges During the Informed Consent Process is Unavoidable” by Scott D. Gelfand
- “Do We Know Whether Researchers and Reviewers are Estimating Risk and Benefit Accurately?” by Spencer Phillips Hey and Jonathan Kimmelman
- “Sperm, Clinics, and Parenthood” by Reuven Brandt
- “What can we Learn from Patients’ Ethical Thinking about the right ‘not to know’ in Genomics? Lessons from Cancer Genetic Testing for Genetic Counselling” by Lorraine Cowley
- “The use of Ethics Decision-Making Frameworks by Canadian Ethics Consultants: A Qualitative Study” by Chris Kaposy, Fern Brunger, Victor Maddalena and Richard Singleton
The American Journal of Bioethics (vol. 16, no. 10, 2016) is available online by subscription only.
- “Governance of Transnational Global Health Research Consortia and Health Equity” by Bridget Pratt and Adnan A. Hyder
European Journal of Human Genetics (vol. 24, no. 10, 2016) is available online by subscription only.
- “‘You Should at Least Ask’. The Expectations, Hopes and Fears of Rare Disease Patients on Large-Scale Data and Biomaterial Sharing for Genomics Research” by Pauline McCormack, Anna Kole, Sabina Gainotti, Deborah Mascalzoni, Caron Molster, Hanns Lochmüller, and Simon Woods
- “The Effect of a Decision Aid on Informed Decision-Making in the Era of Non-Invasive Prenatal Resting: A Randomised Controlled Trial” by Lean Beulen, Michelle van den Berg, Brigitte HW Faas, Ilse Feenstra, Michiel Hageman, John MG van Vugt, and Mireille N Bekker
JAMA (vol. 316, no. 10, 2016) is available online by subscription only.
- “Professing the Values of Medicine: The Modernized AMA Code of Medical Ethics ” by Stephen Brotherton, Audiey Kao, and B. J. Crigger
(Reuters) – People with terminal illnesses may legally end their lives with certain medications in the U.S. state of Washington, but researchers report those drugs are getting more and more expensive. The price of one popular drug prescribed under the state’s 2008 Death With Dignity Act increased roughly $2,500 over seven years.
(Medical Xpress) – In this most western tip of Haiti, 300 patients with festering wounds lay silently on beds at the main hospital in the seaside village of Dame Marie waiting for medicine a week after Hurricane Matthew hit the remote peninsula. Among the injured was Beauvoir Luckner, a cobbler and farmer who walked 12 kilometers (7 miles) in three days after a tree crushed his leg and killed his mother when it fell on their house. His leg might have to be amputated, but all doctors can do is clean his wounds because the hospital has run out of everything, including pain killers.
(Wired) – She went home empty-handed, called a pharmacist friend, and found out the truth: there were no refills. Not for her, not for anyone, because of a nationwide shortage of injectable estrogen. As of a few days ago, the drug deficit appears to be recovering. But the US government regulates estrogen for trans women using weird, wonky rules, so while injectable estrogen might be available now, the supply is unstable.
(Scientific American) – According to the American Psychiatric Association, about 5 percent of American children suffer from Attention Deficit Hyperactivity Disorder (ADHD), yet the diagnosis is given to some 15 percent of American children, many of whom are placed on powerful drugs with lifelong consequences. This is the central fact of the journalist Alan Schwarz’s new book, ADHD Nation. Explaining this fact—how it is that perhaps two thirds of the children diagnosed with ADHD do not actually suffer from the disorder—is the book’s central mystery. The result is a damning indictment of the pharmaceutical industry, and an alarming portrait of what is being done to children in the name of mental health.
(Nature) – What hasn’t been widely discussed is the enormous burden of mental-health disorders in migrants and refugees. Clinical psychologist Thomas Elbert from the University of Konstanz in Germany is conducting a local survey of refugees that suggests “more than half of those who arrived in Germany in the last few years show signs of mental disorder, and a quarter of them have a PTSD, anxiety or depression that won’t get better without help”. Previous research shows that refugees and migrants are also at a slightly increased risk of developing schizophrenia.
(BBC) – A Paris hospital is now housing France’s first “shooting gallery” – a safe place where drug addicts can inject under medical supervision. The controversial drug room was opened by Paris mayor Anne Hidalgo and Health Minister Marisol Touraine on Tuesday. It is near the Gare du Nord, a busy station where drug crime is common. The users will exchange hard drugs like heroin and crack for substitutes, along with sterile injection kits. Critics fear it could fuel drug abuse.
(USA Today) – More than half a million Americans with serious mental illness are falling through the cracks of a system in tatters, a USA TODAY special report shows. The mentally ill who have nowhere to go and find little sympathy from those around them often land hard in emergency rooms, county jails and city streets. The lucky ones find homes with family. The unlucky ones show up in the morgue. “We have replaced the hospital bed with the jail cell, the homeless shelter and the coffin,” says Rep. Tim Murphy, R-Pa., a child psychologist leading an effort to remodel the mental health system. “How is that compassionate?”
(The Atlantic) – Mayo Clinic doctor Michael Ackerman pioneered the so-called molecular autopsy in 1999, using a DNA test to explain the sudden death of a 19-year-old woman with a previously-undiagnosed inherited heart condition. Since then, sequencing DNA has become orders of magnitude cheaper and more sophisticated. With medical examiners considering DNA tests as part of autopsy reports, the molecular autopsy has raised new ethical concerns. Family members, in looking for an explanation for their grief, might end up finding unsettling things about themselves.
(Medical Xpress) – A year after a spike in the number of newborns with the defect known as microcephaly, doctors and researchers have seen many of the babies develop swallowing difficulties, epileptic seizures and vision and hearing problems. While more study is needed, the conditions appear to be causing more severe problems in these infants than in patients born with small heads because of the other infections known to cause microcephaly, such as German measles and herpes. The problems are so particular that doctors are now calling the condition congenital Zika syndrome.
Nursing Philosophy (vol. 17, no. 4, 2016) is available online by subscription only.
- “The Metaethics of Nursing Codes of Ethics and Conduct” by Paul C. Snelling
(CNN) – Hurricane Matthew started pounding the eastern coast of Florida as far south as Miami on Thursday afternoon. The storm has been described as historic and extremely dangerous. But there may be one benefit to the storm’s torrential rains: It could put a temporary halt on the mosquitoes that spread the Zika virus. To date, there have been 141 locally transmitted cases of Zika reported in Florida since the end of July.
(The Wall Street Journal) – Amazon’s engineers didn’t anticipate this. But soon after the Echo’s release in November 2014, they found people were talking to it as if it were a person. Amazon tracks every interaction with Alexa, which also powers the Echo Dot and Amazon Tap. The percentage of interactions that are “nonutilitarian” is well into the double digits, says Daren Gill, Alexa’s director of product management.
(Eurekalert) – Though first documented 70 years ago, the Zika virus was poorly understood when it burst onto the scene in the Americas in 2015. In one of the first and largest studies of its kind, a research team lead by virologists at Beth Israel Deaconess Medical Center (BIDMC) has characterized the progression of two strains of the viral infection. The study, published online this week in Nature Medicine, revealed Zika’s rapid infection of the brain and nervous tissues, and provided evidence of risk for person-to-person transmission.
(Bloomberg) – The rate at which American women are dying from causes related to pregnancy or childbirth is on par with Iran, China, and some nations that made up the Soviet bloc. The difference is that in those countries, the prognosis is for improvement. In America, it’s not. The disturbing trend is a counterpoint to global progress on healthy childbirth, according to a comprehensive new study. More than 275,000 women died worldwide last year in pregnancy, childbirth, or complications from it, most of the deaths preventable.
(The Australian) – Major fertility services are providing would-be mothers with baby photos, voice recordings and a run down on the physical and emotional characteristics of potential sperm donors as they cater to an increasing number of single women seeking to have a child. New figures show single women are increasingly choosing to start a family by IVF and that about half of women awaiting a sperm donor at major fertility services do not have a partner.
(The Washington Post) – Now, as I turn 85 Friday, with my life closer to its end than its beginning, I wish to help give people dignity in dying. Just as I have argued firmly for compassion and fairness in life, I believe that terminally ill people should be treated with the same compassion and fairness when it comes to their deaths. Dying people should have the right to choose how and when they leave Mother Earth. I believe that, alongside the wonderful palliative care that exists, their choices should include a dignified assisted death.